Evie has heterotaxy syndrome and this time last year was getting ready for surgery. Now...she is a happy little sister to big brother Max. 

Poor little thing has heterotaxy syndrome which means basically, that her organs are not in the right place. It is rare and affects her heart. Evie actually is lucky. Her heart condition and other issues aren't too severe. Other kids have huge hurdles to get over.

Evie and her brother Max (9) have a fun little trick they do. Max is pretty proud he taught his littler sister something cool to do!


Coming up on May 4th is Heterotaxy Awareness Day. Jen asked that we try to spread the word about this little talked about syndrome. We are happy to do anything that may help...