6 Year Old Raises 750,000 for His Best Friend With Rare Liver Disease! [VIDEO]
8 year old Jonah Pournazarian has a rare liver disease. His liver can store sugar, but it can’t release it. That makes him have dangerously low blood sugar that could kill him. To fight it, his mom has to give him a mixture of corn starch and water through a tube in his stomach. His best friend Dylan Siegel wanted to help…and did he ever.
Dr. David Weinstein, who studies and treats patients with glycogen storage disease at the University of Florida, was almost out of funding when he heard that Dylan wanted to help raise money to find a cure for the disease. Dylan was only 6 years old at the time, so Weinstein mostly just thought he was cute.
Even though Dylan is cute, he was also serious and wrote a book ‘Chocolate Bar.’ He says that ‘chocolate bar’ means awesome to him…like ‘Disneyland is so chocolate bar.’ The last page says, “I like to help my friends. That is the biggest chocolate bar.”
The book is 20 dollars and he has raised more than $750,000 in a little more than a year. Every cent goes to Weinstein’s lab. And just to blow your mind even more, that’s more money than all the medical foundations and all the grants combined raised for this disease.
Dylan thinks that a cure will be found soon and he and Jonah won’t have to worry about this when they are in high school. I hope so.