Connor was born a healthy baby boy at around 37 weeks due to a very complicated and dangerous pregnancy. After Connor was born he grew and thrived like any newborn should. At about 5 weeks of age Connor developed a very serious case of RSV and landed himself into the hospital for 10 days. During that 10 day period Connor was unable to feed and lost a good amount of weight. I was hopeful that once the RSV cleared he would continue to grow like he did before. I never could have imagined what was next for us.

Throughout the next year of Connor's life he grew sicker and sicker with various and worsening respiratory disease and failure to grow. He continued to dip in his weight every time he became sick. During this year Connor was hospitalized more times than I can remember. Each time our hearts would break because we had no idea what was going on with our little man.

After a year of trying to figure out what was going on with our little guy I became so frustrated that we just couldn’t help him. I decided that I needed to do something and I needed to do something NOW. I am his only advocate, I am his mother. I decided to make the call to MassGeneral Children's Hospital in Boston. I pleaded to talk with someone right then and there and not be passed on to voicemails. After a handful of very tearful conversations we were driving to Boston the next day.

We have been receiving care in Boston since April and have made more progress with them than anywhere else. Granted we do not have a concrete answer for what is going on we have discovered a few key components that contributed to his illnesses.

I am hopeful and pray every day that we can find a cause and treatment for our Connor. He deserves to live a healthy life. We currently live over a 100 miles from the hospital and each travel is a huge expense for our family.

If you have ever had the pleasure of meeting Connor you would know that he is a fighter and that no matter what he is going through he always has that cute little smile on his face. We are not the type of people that like to ask for help but our little guy needs it and we want him to be able to continue to fight and for us to fight for the care he needs.