This sweet little boy was born August 6, 2015 with a rare genetic terminal disorder. A benefit is planned on August 5th to celebrate his first birthday**. 

Sheena and Corey, Jackson's parents learned that their little boy had a rare, terminal and untreatable genetic disorder, when he was only a few months old. He was diagnosed with Peroxisomal Biogenesis Disorder/Zellweger Spectrum Disorder, a terminal and degenerative illness.

The Smith's kept the diagnosis to themselves for three months. When they went public on Facebook, they were shocked and encouraged by the outpouring of support by family and friends...and total strangers.

There are only 100 children in the country that suffer PBD/ZSD.

You cannot imagine the expenses involved in trying to make Jackson comfortable. Mom has said,

We will stop at nothing to make sure Jackson is well taken care of. He can depend on me to be a fighter and his advocate for the rest of his life.

How can you help? There are a couple of ways, and both are celebratory.

Coming on on JUNE 27TH (MONDAY) Easy Day on 725 Broadway in South Portland will donate 10% of food sales to the Jackson Smith fund and his journey of hope!

Then, let's all celebrate Jackson reaching a milestone - his first birthday**.

Italian Heritage Center / Jackson Smith's Journey of Hope

Friday August 5th, 2016

7pm-11pm

Music by: Substitutes

Comedian: Betsy Crowell

Appetizers, Cash Bar, Raffles/Acution

Tickets are $20.00 a person

For more information please contact Donna Van Horn 671-7708 or pphockeygirl@gmail.com or Karen Smith ksmith02@maine.rr.com.

Thanks for helping this little guy...

**Thank you for all the support. This is NOT a birthday party for little Jackson - more a celebration on his journey of hope. This event on August 5th is 18 and over. I'm sorry, but this is not an event for kids. Thank you again and we hope to see you there!**